The High Price of “I’m Fine” (and Other Retired Phrases in the Chronic Illness Vocabulary)
Some phrases stopped working the moment my body did. Here’s the vocabulary I’ve quietly retired — and what I actually mean now.
-
-
My POTS Survival Kit (The Stuff That Actually Helps)
The internet will hand you a firehose of recommendations when you’re newly diagnosed. This is not that. This is what actually lives on my nightstand.
-
What POTS Feels Like (From Someone Living It Every Day)
I’m sitting on the edge of my bed. My feet are on the floor. My eyes are open. And I cannot stand up yet.
-
What Is Dysautonomia? (Explained by Someone Who Actually Has It)
Your autonomic nervous system runs everything you never have to think about — heart rate, blood pressure, digestion, temperature. Mine decided to stop cooperating. Here’s what that actually means.
-
Who I Am and Why This Blog Exists (Or: How a Nine-Year-Old Fainting Under a Church Pew Started All of This)
I fainted under a church pew at nine years old. My mom thought I was acting up. That was just the beginning of a very long conversation between my body and the medical system — one where I did most of the talking and nobody listened.
